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Caregiving & Employer Support: What does it look like?
As summer approaches, we hope this message finds you and your loved ones well…or well cared for and as comfortable as possible. We understand the ebbs and flows of caregiving! After a hiatus due to family caregiving responsibilities, we’re back in the saddle with what will be a combination of blog posts (albeit sometimes more brief than past) and episodes on our YouTube channel, Caregiving Insights. Oh, and stay tuned for later this year a soft launch of our new platform that enables caregivers to uniquely connect with each other! For now… …consider the following: 10,000 baby boomers a day have turned 65 after 2010 and by 2030 all boomers will be at least that age. That’s a very large number of people who are entering…
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Our New Podcast Has Launched
NOVEMBER 12, 2021 Yay!! After lots of planning, the new podcast has officially launched! Caregiving Insights will be an ongoing podcast series, bringing you different perspectives on a wide array of interesting topics. Our guests will include thought leaders from healthcare, business, and nonprofits, as well as caregivers, patient advocates, patients, and others. Each will share unique insights from their vantage points — about caregiving, patient advocacy, and life. As with our blog, the podcast is intended to: to provide greater understanding about caregiving and patient advocacy. to effect change in the U.S. and around the globe through helping to build bridges within families and communities. to help the movement for economic changes in support of the millions of people who take on the roles…
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Caregiver Trends In The U.S. Indicate Grave Concern: Figuratively Speaking
1 Day 1 Week is two months old this weekend and it will be the first time we get to experience November’s National Family Caregiver’s Month with you. This is a perfect time to review the U.S. caregiving landscape. Before doing so, I want to share with you some exciting news. As I’ve mentioned in previous email updates and weekly blog posts such as last week’s Music: Uplifting Caregivers & Patient Advocates, One Song At A Time, two new features are being developed. Well, we’re ahead of schedule with the first one! We’ve pushed to make that happen and it will appropriately launch during National Family Caregiver’s Month. This new feature is an ongoing podcast series focused on anything and everything, related to caregiving and…
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A Drug-Induced Reflection, So To Speak
Three days ago, my mom began yet another drug – this one administered through subcutaneous infusion therapy at home. Before getting into the exasperating road that led to this situation, now is a good time to reflect on the overall topic of medication and share some insight. Along my mom’s Systemic Sclerosis (Scleroderma) journey there have been countless situations that have led to a myriad of drugs being prescribed, whether in an acute hospital setting or as an outpatient. “Myriad” is a gentle way of saying, I can only begin to tell you how many drugs (50, 75, or more), what they were, what the situation was, and what benefits (or harm) they brought to her. To this day, in each situation, there may or…
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Kidneys and Lungs and Heart, Oh My!
Well, after a soft launch of 1 Day 1 Week this past Monday (August 30) to a network of friends, some future topics that were requested included: Denial vs. Dealing, Handling the Unknowns, Self-Care, and Caregiver & Patient Conflicting Beliefs / Wishes. Those are among countless topics to write about as standalone blog posts and/or be interwoven into my overall blogging journey! For today, I’m going to focus on Kidneys and Lungs and Heart, Oh My! Did you catch the play on words from the Wizard of Oz? Whether you did or didn’t, it’s from the book/movie’s famous line “Lions and Tigers and Bears, Oh My!” that Dorothy said as she, the Tin Man and Scarecrow entered the dark, creepy forest. The correlation to being…
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Beginning of the Journey
How did your caregiving/patient advocacy journey begin? It can happen in different ways. From what I came to learn, the beginning of my journey was like millions of others who take on this role – it happened fast and without warning. In my case, Spring 2017. Prior to that, I had no thoughts that caregiving/patient advocacy was going to become a part of my life – changing it in every way! Having witnessed my grandparents being cared and advocated for by my mom 20-25 years earlier, I had some idea of what the role entailed. She would take them to appointments, handle various aspects of doctor communication, interpret situations to ensure the best possible care was being planned and received, and so much more. She…
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Caregiving: A Journey Like No Other
Welcome, everyone! It’s taken me years to put pen to paper – or in this case fingers to keyboard – and it feels great to get this going! So, a sincere thank you for taking the time to read this initial post on the 1 Day 1 Week blog. Whether you are a caregiver, patient advocate, someone being cared for, or someone who cares about any of the aforementioned, I hope you find this blog engaging on an ongoing basis. The name 1 Day 1 Week is born out of a mantra that we caregivers and patient advocates around the world often live by – for practical purposes and sanity-sake amidst these challenging and rewarding journeys we’ve chosen for whatever reasons and circumstances. So, where…