Generated by All in One SEO v5.0.0.1, this is an llms.txt file, used by LLMs to index the site.A Blog for and about Caregivers & Patient Advocates ## Sitemaps - [XML Sitemap](https://1day1week.com/sitemap.xml): Contains all public & indexable URLs for this website. ## Posts - [A Rare Disease Patient - Realities, Optimism, Advocacy & Wisdom](https://1day1week.com/a-rare-disease-patient-realities-optimism-advocacy-wisdom/) - This episode contains a powerful story of resilience through the challenges of battling a rare disease. Amy Gietzen has done this for over 20 years, as she's become one of the foremost advocates for Scleroderma patients. She is a patient ambassador for Patients Rising, a community outreach volunteer at Steffens Scleroderma Foundation, advocate for the - [1Day1Week is Moving On...for now](https://1day1week.com/1day1week-is-moving-on-for-now/) - Although there's sadness, it's with great pride that I am moving on from the 1 Day 1 Week blog. At its inception back on August 22, 2021, the blog was meant as a platform for me to share about the caregiving journey with my parents. As I've shared since then in the blog, as well - [A Father & Daughter Bond As EMT Caregivers](https://1day1week.com/a-father-daughter-bond-as-emt-caregivers/) - This is a very special episode of Caregiving Insights with The Dr. Raj Podcast! Todd "TJ" Keitz, Caregiving Insights founder/host and My Care Friends founder/CEO is co-hosting this episode with Dr. Raj, host of the Dr. Raj Podcast, weekly contributor to ABC News Los Angeles, frequent guest on "The Doctors" tv show, and much more. - [An Alzheimer's Love Story: How to be there for the one you love](https://1day1week.com/an-alzheimers-love-story-how-to-be-there-for-the-one-you-love/) - We had a VERY special guest (and addressed a very important topic!) for the 1st Caregiving Insights episode of 2024! Todd "TJ" Keitz, Founder of this blog, Caregiving Insights, and My Care Friends, was truly honored to welcome the former Governor of Wisconsin, Martin J. Schreiber. Marty is a wonderful human being, who cared for - [The ALL HOME CARE MATTERS' journey - Who, Why & More!!](https://1day1week.com/the-all-home-care-matters-journey-who-why-more/) - This episode of Caregiving Insights was so meaningful for host, Todd "TJ" Keitz! When he met Lance A. Slatton earlier this year before the launch of My Care Friends, it was apparent their commitment to caregivers and patient advocates was in alignment. As they discussed Todd being a guest on Lance's podcast All Home Care - [A Caregiving Youth's Story](https://1day1week.com/a-caregiving-youths-story/) - As we shared last month, there are over 5.4 million caregiving youth in the U.S. and countless others around the world. In this episode of Caregiving Insights, My Care Friends' Founder/CEO Todd "TJ" Keitz sits down with 18-year old Kaylin Jean-Louis -- caregiver, radio host, motivational speaker, and founder of Kaylin's Caring Konnection. Kaylin graduated - [Caregiving Youth: Hidden In Plain Sight](https://1day1week.com/caregiving-youth-hidden-in-plain-sight/) - There are over 5.4 million caregiving youth in the U.S. and countless others around the world. Childhoods are altered and often missed out entirely for these kids. The U.K. is light years ahead of the U.S. when it comes to supporting them. How can the U.S. be better? Who is identifying these kids, how are - [Considerations for Employees & Employers related to Caregiving & PTO](https://1day1week.com/considerations-for-employees-employers-related-to-caregiving-pto/) - Are there any legal protections for caregivers under the law? What are the basic differences between ADA, FMLA, ADEA, FCRA and FLSA, and do they apply to an employee's caregiving situation? Are there baseline legal responsibilities for employers when it comes to providing PTO? How are employers large to small dealing with PTO for employees? - ["Time flies over us, but leaves its shadow behind."](https://1day1week.com/time-flies-over-us-but-leaves-its-shadow-behind/) - Nathaniel Hawthorne. Profound. Emotive. Reflective. It's been just over five years since my mom's health crashed in June 2018 and life changed in many ways. Her Systemic Scleroderma journey since then has been challenging, starting with 17 hospitalizations in 22 months and a number of them life threatening. If that weren't enough, shortly after her - [Caregivers: Planning for Travel with Peace of Mind in Mind](https://1day1week.com/caregivers-planning-for-travel-with-peace-of-mind-in-mind/) - I returned June 17 from three weeks away -- from caregiving and patient advocacy responsibilities for my parents. The travel to California and Colorado was planned last October, to mark the five year anniversary of my mom's health crash in June 2018. For those who have read this blog and/or watched Caregiving Insights episodes, you - [Long-Term Care Insurance: Who, What, Where & More! (3 Episodes)](https://1day1week.com/long-term-care-insurance-who-what-where-more-3-episodes/) - Not to be missed! This is truly for everyone, with lots to consider no matter your age, socio-economic standing, etc. Long-term care insurance is an often misunderstood and confusing topic, in and of itself, and related to overall LTC planning. In December, our founder Todd Keitz was fortunate to have Kelly Augspurger, CLTC®, CSA, LTC Insurance - [Deprescribing - All You Never Knew About It](https://1day1week.com/deprescribing-all-you-never-knew-about-it/) - So, what is deprescribing? According to deprescribing.org, it’s the planned and supervised process of dose reduction or stopping of medication that might be causing harm, or no longer be of benefit. Deprescribing is part of good prescribing – backing off when doses are too high, or stopping medications that are no longer needed. We often - [Patient Assistance Programs & Drug Trials: Explained](https://1day1week.com/patient-assistance-programs-drug-trials-explained/) - These topics are often misunderstood or not at all. Other than having heard of patient assistance programs and drug trials, to what extent do caregivers and patient advocates (or anyone for that matter) know what they are all about? Learning and understanding the intricacies can greatly benefit patients, caregivers and patient advocates in many ways. - [An Alzheimer's Caregiver Journey](https://1day1week.com/an-alzheimers-caregiver-journey/) - Per the Alzheimer's Association, an estimated 6.5 million Americans age 65 and older are living with Alzheimer’s dementia in 2022. That means of the total U.S. population, about 1 in 9 people (10.7%) age 65 and older has Alzheimer’s dementia. The numbers will rise significantly over the coming decade, as 10,000 baby boomers turn 65 - [Caregiving: from blog to podcast (and soon an app)](https://1day1week.com/caregiving-blog-podcast-app/) - It's been a bit over a year since 1 Day 1 Week launched an almost a year for Caregiving Insights podcast. Soon a caregiving app -- stay tuned! - [Practical Tips for Caregivers & Patient Advocates](https://1day1week.com/practical-tips-for-caregivers-patient-advocates/) - Episodes 10 and 11 contain a chock full of practical tips! I'm thrilled to be joined by Laurette Foggini, as she draws on her extensive experience on the administrative side of caregiving and patient advocacy, combined with her subsequent (and current) journey with her mom. Part 1 explores topics such as developing care plans, caregiving - [Self-Care for Caregivers: The Power of Reiki](https://1day1week.com/self-care-for-caregivers-the-power-of-reiki/) - In this 25-minute episode of Caregiving Insights, I chat with Sovan Purkait. We explore what led to his first Reiki experience, believing in its healing effects, and subsequently co-founding The Rainbow Miracle with his partner. The first half of the episode explores Sovan’s journey and “what is Reiki”, then we delve into the benefits to caregivers - [Patient Advocacy: Considerations from a Patient & Advocate](https://1day1week.com/patient-advocacy-considerations-from-a-patient-advocate/) - I'm thrilled to have Amos Odeleye-Ajakaye as a guest on Caregiving Insights. In this episode, I explore with Amos his journey from Nigeria to the United States, and from healthcare professional to being a patient. As a healthcare professional, Amos knew a lot about advocacy and caregiving. Once he became a patient, his knowledge went - [Caregiving & Employer Support: What does it look like?](https://1day1week.com/caregiving-employer-support-what-does-it-look-like/) - As summer approaches, we hope this message finds you and your loved ones well...or well cared for and as comfortable as possible. We understand the ebbs and flows of caregiving! After a hiatus due to family caregiving responsibilities, we're back in the saddle with what will be a combination of blog posts (albeit sometimes more - [Patient Advocacy: Considerations from a Patient & Advocate](https://1day1week.com/patient-advocacy-insight-patient/) - Recently, Todd was thrilled to be a podcast guest of Tracey Welson-Rossman, founder of Journal My Health and Joyce Yaccarino Griggs, founder of United States of Healthcare. The discussion touches on many topics, including defining the difference between caregiving and patient advocacy, staying organized, family conversations, documentation, reaching out for help, patient bill of rights, - [Time: Continues to fly by -- literally & figuratively](https://1day1week.com/time-continues-to-fly/) - Since my previous post in late January, I've been on 15 flights from east to west, north to south. Philadelphia, Austin, Oakland and their surrounding areas. Some work. Some play. Lots of delayed purging due to the pandemic. To enable this happen, I first had to get over my concern about traveling during Covid -- - [Time: Flies By In The Blink Of A Hospital Stay](https://1day1week.com/blink-of-a-hospital-stay/) - I’m sorry it’s been quite a while since my last 1 Day 1 Week article. There are various reasons. One is that I was focusing on the Caregiving Insights podcast and have posted four episodes. With otherwise limited time, I simply couldn’t find the hours to write/edit/proof/post/promote an article. Also, the holidays and traveling/getting away from - [Patient Advocacy & The Co-Creation Experience](https://1day1week.com/patient-advocacy-the-co-creation-experience/) - A happy, healthy wish to everyone from 1 Day 1 Week! It's been weeks since the last post, which was intentional considering folks were busy with the holidays and I took some overdue self-care. Now it's time to gear up for a great 2022, bringing you many more podcasts and articles about caregiving and patient - [Healing Through The Arts (caregivers, hospitals, anyone!)](https://1day1week.com/healing-through-the-arts/) - The healing referred to in this episode is about nourishing the soul. Patients and caregivers have their individual and intertwined journeys that are so often depleting. The arts are a beautiful gift to nourish oneself and those we care for. How is this accomplished? How can a hospital be involved? A family? Todd "TJ" Keitz, - [Perspectives on Caregiving & Patient Advocacy: A Podcast](https://1day1week.com/perspectives-caregiving-patient-advocacy/) - There are so many things to consider regarding caregiving and patient advocacy! Whether you are already in one or both of these roles, or you may be in the future (to whatever extent), this episode provides important insight. This is Episode #2 on our new YouTube channel, Caregiving Insights. I explore these topics from various - [Thanksgiving: Heartfelt Messages For Caregivers & The Cared For](https://1day1week.com/thanksgiving-heartfelt-messages/) - Happy Thanksgiving, everyone! I’m sorry for the delay posting a new entry on 1 Day 1 Week. One reason was because I focused on launching our new podcast series, Caregiving Insights. The first episode that went up on November 8th is with Pat Samples, an awesome author and thought leader on various topics, including caregivers - [Our New Podcast Has Launched](https://1day1week.com/podcast-launch-caregiving-insights/) - NOVEMBER 12, 2021 Yay!! After lots of planning, the new podcast has officially launched! Caregiving Insights will be an ongoing podcast series, bringing you different perspectives on a wide array of interesting topics. Our guests will include thought leaders from healthcare, business, and nonprofits, as well as caregivers, patient advocates, patients, and others. Each will - [Music, Oh Sweet Music: Soundtracks For Caregivers & Life](https://1day1week.com/music-soundtracks-for-caregivers-anyone/) - MUSIC… As described in Britannica, “it is an art that, in one guise or another, permeates every human society.” At the same time, it would not be a stretch to say that in some way, on some level, music permeates the soul of every human being. When you think about it – no matter what - [Caregiver Trends In The U.S. Indicate Grave Concern: Figuratively Speaking](https://1day1week.com/caregiver-trends-grave-concern/) - 1 Day 1 Week is two months old this weekend and it will be the first time we get to experience November’s National Family Caregiver’s Month with you. This is a perfect time to review the U.S. caregiving landscape. Before doing so, I want to share with you some exciting news. As I’ve mentioned in - [Music: Uplifting Caregivers & Patient Advocates, One Song At A Time](https://1day1week.com/music-uplifting-caregivers-song/) - Hi everyone! Well, I had planned on writing my usual weekly blog post of 1,500 to 3,000 words. But, as caregivers/patient advocates know, what’s planned for a week often takes on a life of its own and free time becomes fleeting. This past week was one of those for me. While this post is shorter - [The Road to Burnout City & Back: A Caregiver’s Perspectives & Practical Tips](https://1day1week.com/caregiver-burnout-perspective-tips/) - Where to begin? Let me start by sharing that I am thankfully not burned out right now, so this post won’t be written from a place of complete exhaustion. That said, there’s no mistaking I have experienced an extreme burnout once along my caregiver/patient advocate journey since June 2018 – not to mention what I’ll - [A Drug-Induced Reflection, So To Speak](https://1day1week.com/drug-induced-reflection/) - Three days ago, my mom began yet another drug – this one administered through subcutaneous infusion therapy at home. Before getting into the exasperating road that led to this situation, now is a good time to reflect on the overall topic of medication and share some insight. Along my mom’s Systemic Sclerosis (Scleroderma) journey there - [Friends Are Found On Every Road](https://1day1week.com/friends-on-every-road/) - If you’ve read my previous posts, you know my caregiving/patient advocacy journey has been a roller coaster ride filled with unfathomable situations, lots of stress, and a full sway of emotions. While it’s certainly been challenging on many levels, there’s also been lots of beauty intermixed and I want to share one aspect of that - [Scenes from a Son's Life as Primary Caregiver/Patient Advocate: Chapter 2 - The Longest Hour](https://1day1week.com/a-sons-life-as-primary-caregiver-patient-advocate-chapter-2/) - Hi again! I’ve been debating for the past few days -- what topic to write about today. Should it be a specific caregiving or patient advocacy topic (e.g. getting comfortable with the unknown, hospital/clinic protocol, etc.), or writing another installment of “Scenes from a Son’s Life…” As you can tell from the title of this - [Scenes from a Son’s Life as Primary Caregiver/Patient Advocate: Chapter 1 - Real & Surreal](https://1day1week.com/scenes-as-primary-caregiver-patient-advocate-real-surreal/) - As Forest Gump (played by Tom Hanks) expressed, “My momma always said, 'life is like a box of chocolates, you never know what you're going to get.'” While we can debate the deep interpretations of that quote, on a basic level it’s clear the overall intent of momma was to convey that life is unpredictable - [Caregiving: A Journey Like No Other](https://1day1week.com/journey-like-no-other/) - Welcome, everyone! It’s taken me years to put pen to paper – or in this case fingers to keyboard – and it feels great to get this going! So, a sincere thank you for taking the time to read this initial post on the 1 Day 1 Week blog. Whether you are a caregiver, patient - [Alzheimer’s, Heartbreak & A Godsend](https://1day1week.com/alzheimers-heartbreak-a-godsend/) - My mom turns 90 this month - a major milestone certainly worthy of celebration. So, my wife and I will throw a nice party for her with many of her relatives in attendance including grandkids, nieces, nephews, etc. Unfortunately, my mom won’t be there. Her trusty vessel of a body that has served her well - [Kidneys and Lungs and Heart, Oh My!](https://1day1week.com/kidneys-and-lungs-and-heart-oh-my/) - Well, after a soft launch of 1 Day 1 Week this past Monday (August 30) to a network of friends, some future topics that were requested included: Denial vs. Dealing, Handling the Unknowns, Self-Care, and Caregiver & Patient Conflicting Beliefs / Wishes. Those are among countless topics to write about as standalone blog posts and/or - [Beginning of the Journey](https://1day1week.com/beginning-journey/) - How did your caregiving/patient advocacy journey begin? It can happen in different ways. From what I came to learn, the beginning of my journey was like millions of others who take on this role – it happened fast and without warning. In my case, Spring 2017. Prior to that, I had no thoughts that caregiving/patient ## Pages - [Resources](https://1day1week.com/resources/) - As caregivers and patient advocates, many emotions can surface from day-to-day, week-to-week. Some of these feelings hit us immediately and others not for a while. No matter when they show up, it is important to remember that you are important. All of your emotions are valid, whether you or anyone else perceives them as good - [Caregiving Insights](https://1day1week.com/podcasts/) - The Caregiving Insights podcast is no longer in production, but you can find all of 23 of the recordings below and on the My Care Friends Network channel on YouTube. There you will also find all of the podcasts that have been recorded as part of each My Care Friends special educational series, starting in - [Our Spirit](https://1day1week.com/our-spirit/) - “When you are a caregiver, you know that every day you will touch a life or a life will touch yours.” Unknown Our Genesis 1 Day 1 Week was created in September 2021 by Todd “TJ” Keitz, after 3.5 years of what was often 24/7 caregiving and advocacy for his parents. The blog was an - [Terms of Service](https://1day1week.com/terms-of-service/) - Terms of Use Agreement (updated February 20, 2023) This Terms of Use Agreement (this “Agreement”) is entered into by and between My Care Friends LLC (the “Sponsor”) and “you,” the user of this web blog, also known as “1DAY1WEEK.COM” (the “Site”). Access to, use of and/or browsing of the Site is provided subject to the terms - [Welcome to 1 Day 1 Week!](https://1day1week.com/welcome-to-1-day-1-week/) - Welcome to 1 Day 1 Week and thanks for visiting! Whether you are a caregiver, patient advocate, a patient, or someone who cares about any of the aforementioned, I hope you find this blog engaging on an ongoing basis. 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